It takes time for things to heal admittedly, but I have to say that alot of this mindfulness and new age bullshit is exactly that…bullshit. It is an industry just like all the other crap that we seem to buy into, that earns dollars and rarely really has a true concern for our needs…without an agenda…C’est la vie?
Why do we as a reasonably intelligent, or is that questionable, people accept that? Is it because we dont seem to have a moral compass anymore..one that used to be influenced religion? Or similar?
It’s taken me some time. I have evolved past the yank 1..the life beyond him…one… I had a couple of years and as I read previously at the end of time with yank 2 which now seems eons ago another period of time where I felt like I needed to be with these men. I could not be complete without them, or so it seemed. Reality now. I am very much a strong and confident individual without these men that I thought were the be all and end all of life. You see, I bought into the mantra of society that if I did not have a committed partner I had a problem.
WELL FUCK THAT…I now realise this is a myth constructed by religion and a mentality that can not see beyond a paradigm or archaic construct that I no longer want to be a part of. If you are in a happy committed relationship I am happy for you, but do not put that expectation on me. You do not have that right. If I choose to live a free life then that is my right.
You just need to see beyond the construct of our previous shackles and mentality….you really do.
So after my soapbox speech, this is what is going on with me…LOL.. bear in mind I am several whiskeys to the wind right now. Several…
When I got back from that wonderful trip to Chicago and Tennessee, and it was wonderful, and I will not forget the wonderful time I had with yank 2, and at that time he was amazing and I cannot fault him at that time and I am grateful for the amazing time we had and I will never forget it.
What happened after that, well, it was mainly my fault, I was insecure and vindictive I admit. And I am not proud of it but it put an end to us an I am sad it happened that way.
But he suggested the time and distance and it worked. I struggled but over time I let go. Which I think he knew and wanted. I dont blame him.
I did drunk dial him a number of times after, and he ignored me. I dont blame him for that also although I think a big man would have the courage to be friends. He was not.
So now; I have been dating three different men. Well I was prior to writing this. But the adventures I wish I had written about…oh my lord. Another three characters: boring, Italian and dreadlocks boy. Oh dear god..
I am to tired for this right now…temporary… oh geez.. I need to sleep..work in the morning. I have been in my job for almost a year and a half and I am grateful for the stability but I need to investigate a different career…something that soothes my soul…perhaps writing…to be continued..
I have just arrived home from a wonderful 12 days away in the States, 9 that really mattered..
Sitting and sipping just a finger or two of my duty free whiskey, trying to get over the damned jet lag that I did not feel until about an hour ago and thinking that it may help lull me to sleep eventually, but not for a while, I need to get back to my normal pattern.
You see, I just had the most wonderful 9 days with Yank 2…And remember thinking as I felt so sad taxi-ing out of Chicago a day or so ago and leaving that marvelously interesting, charming, sweet, vulnerable, disarming, extraordinarily intelligent, handsome, beautifully complex and..an absolute gentle-man to boot, what a difference?!
I am perplexed. When I compare it with the “him” in my title, this gosh darn waste of words and blog…NO FUCKING CONTEST…
This man (yank 2) has more class in his little toe, on one foot mind you, than that other wanker ever had in all his life…sound harsh, wasn’t meant to be but my god when you see and experience such a profound difference in human behaviour, relationships…uhh
I wanted to write and catch every wonderful moment, but we just spent quality time together. And quality it was. From the time I arrived and he picked me up at the airport..his beautiful cheeky peek around the pilon right near me and when I saw it I was immediately thrilled and laughed at the same time. That is the difference. We laugh together. The kiss…
This man knows how to treat a woman. Something Yank 1 said and professed profusely but did not have a clue about.
I had to write about it. I no longer care..the past is well past. It was an experience but one that affected me immensely at that time in my life. But irrespective of what happened I knew yank 2 and I would connect on a much better level. We have been talking on skype for a long long time.
We have our…issues, not he and I but us individually. We are not good at relationships either of us. And we did have a ‘moment’ once in the entire time but seem to sort it, because we like being with each other.
From our road trip to Memphis, we were in the car for long hours driving there and back, but we were good. We got to see Graceland, a highlight in so many ways. And had a great night out on Beale st, we saw Sun Studios and Stax..Soulsville, my god I was in absolute awe.
Jazz and blues in Chicago, Pool and drinks at his local which was a charming little bar near where he lives. Oh dear, so many wonderful days and nights..
ITS HOW ITS DONE…opening the car door for a woman, walking on the road side to protect her from traffic, just a numerous amount of things that I was …I thought that was an older courtesy that was old and long gone. But let me tell you, chivalry is not quite gone. This man has it in spades and I am so lucky he is in my life. After all this time.
And he has a beautiful soul.
I want to write more but am so tired right now, and what little whiskey is left in my glass I want to savour as I look out at this marvelous view, listen to good music and remember so many wonderful days with him…and ponder… the life beyond…
Love and whitelight xx
It is such a beautiful day today. After a week of almost non stop rain and grey skies the sun has come out and I am trying to get myself motivated to go to the gym, or at least go for a walk in the sunshine and fresh air. Touch nature. Earth myself and reconnect with life going on. Because I have disconnected again.
Normally I would have my beautiful eldest son here with me being a Sunday, but this morning as I woke I struggled. I have been struggling for the past week at least. I had a virus and my body was so fucked up with anxiety, grief and stress that it was fatigued and just said ‘no’. For at least 3 of the days I could barely pull myself out of bed. I felt so weak. Nothing is more fucked up as when both your body and your mind says ‘no’.
All things were leading to it. My eldest son whom those who read this blog know is now showing the full effects of this insidious neurodegenerative disease that not only takes everything from him but takes those that love him along with it…its painful to watch. Inside I feel like my heart is slowly being torn to bits, and my soul aches. My hopes and dreams for this beautiful human to have a wonderful fulfilling life no longer an option.
Some days I pull myself out of everything because I can not face watching everyone else be able to just go on with their lives, moaning and groaning about how someone cut them off on the road, or the neighbours cat pooing in their garden, or a friend bitching about another friend because they just did not agree with them, or that America is in such a hole because of that idiot twat-face who seems to think he has the right to call himself a President! and I just want to scream;
FUCK YOU ALL, FUCK YOU WITH YOUR INSIGNIFICANT DIATRIBE…..MY SON IS DYING…
So many things have pushed me these last weeks. Hearing that his sight is starting to fail on top of everything else and being with him on the couch watching him fall asleep next to me tired and imagining he may stop breathing in front of me, or is this what he will look like when he passes. Shit at the office, people speaking to me and about me as if I was a bit of shit under their boot because their own lives are so fucked up they needed to pick on someone who seems happy and affable and just ‘nice’. A very dear friend of mine, miles away in Sydney where I can’t get to see him telling me by text because he can no longer speak, his cancer has now moved into his spine. An ex – fiance who I haven’t seen in nearly 30 years arriving back in town and harassing me endlessly with phone calls and text messages to help him because he did stupid stuff again and has no one else he can leach off because he has fucked up again and again, but hey, just call Roz..she’s a soft touch. And lastly, temporarily pulling away from my beautiful yank 2 because everything that was going on was becoming just too much and causing myself heartache over it in the meantime because I was shutting myself off from the one thing that does bring some happiness and joy into my life at present.
I don’t make it easier by not taking medication, everyone else does it to cope why don’t I?
Because it took me a long time to see my normal self again after 17 years on it and I worked hard to find me again in the middle of probably the worst 5 years of my life. No, I got that wrong, this has been a return to some of the worst years of my life as my childhood was pretty awful and fucked up.
Doesn’t matter what I say, there will always be some other smartarse out there that will say; well at least you have a roof over your head and you are not starving etc etc…I fucking know that you moron but there is only so much a person can handle on their own in their own life without taking on the guilt of every fucked up thing in this world today.
I watched the wonderful Gore Vidal in a documentary about his life last night. It was not too long before his death and an interviewer asked him what he thought his legacy would be and he did not miss a beat and said “I really do not give a … damn”. It made me laugh. It made me think how wonderful it would be if I could simply not give a damn about it all. Easier, less painful.
But I can’t because I do, so I need to take each day as it comes and move one foot after the other and reconnect.
I am now going to take that walk in the sunshine whilst it is out….
Love and whitelight xx
It’s been many months since I have posted. Recently a friend said to me ‘you haven’t written in your blog for a long time’ I told her I was surprised she’d read it, and she said, ‘of course I enjoy reading it’.
Writing seemed to help me through troubled times. My very first post was 18 May 2015 only days after being back from Arizona and seeing the ‘him’ in ‘life beyond him’ that fucking crazy time. When I read back some of my posts I say ‘oh boy what a troubled mind’.
Yank 2 (I hate calling him that now because I know he doesn’t like being referred to as yank but that was the character name I gave at the time), Chicago boy, whom I am still connected to but this weekend had decided to pull away from for my sanity often says my one redeeming feature is self awareness. Oh I am aware, I am aware how much I do not fit into this crazy existence and at times, like today I realise how much easier it is to just let everything overwhelm you to such an extent that you just want to leave this life..find peace, and death seems very attractive. But that is no longer my reality. I am stronger than that. I just have days when I need to recalibrate. I am still 2 and a half years off antidepressants after 17 years on them and although I have bad days they are few and far between now and I get over it. The reality is life is not one straight path. It meanders and it runs uphill and downhill and sometimes round and round in circles.
Today I am having a mental health day. And I have been honest and told my bosses why. But I feel incredibly guilty because I am grateful I now have a job. I work with good people and that is a blessing and even though it is only a contract until September 2018 I at least feel safe until then and that helps. I have an apartment with an amazing view of the city. Its old inside, paint peeling, fixtures from the early 60’s but I have made it my space and it is pretty cosy. I get out and about more often and even though I still would prefer to be elsewhere, like Sydney or even Chicago, at this time it is good to be in the city. I have some freedom again, not locked up in a little room miles from everything, isolated, down and unable to afford to get out and see my sons let alone anywhere else, living with a loud, selfish and quite mad mother whom I now just pity more often than not.
I see my sons regularly and at this time with my eldest sons disease now taking everything from him it is where I need to be. After spending the day with him yesterday and watching him trapped in his body, with his eyesight going now too…I looked into those beautiful eyes as I held him and I felt utterly shattered. I cried in front of him (and that is not done in my book, I always try to keep him happy) and apologised that this was happening to him and I felt so helpless…it was the worst feeling in the world. It makes the pain, hell and damage I felt from that narcissistic bastard of 2 years ago pale in comparison.
And Yank 2. We are still friends. We had agreed about a year ago to keep things at that level but somehow it escalated it again and only a week ago we were talking about first me going over there for a couple of weeks and then it changed to him coming here, well, to Sydney at least where his brother is. Where we would finally meet in the physical sense. We have had months of the most amazing connection, skyping regularly every week, I think the love and care was just palpable. Plenty of laughs and good discussions. But we are both quite flawed individuals. I am probably more prone to admitting that than he.
I stopped writing also because I felt it difficult to tell this story and put it out there in public without repercussions. People knowing or realising who I am talking about. The Italian hated it and yet read my posts especially about him constantly. Alot of people want privacy yet have no problem with social media posts, selfies and yank 3 used to say he liked reading about himself in my posts! But he’s a crazy funny bastard and is quite happy with himself. He has left Guam now and is back in the States, Texas I think after a short time in Colorado. He pops up now and again, sends me something funny on Messenger but we are not Facebook friends. I try to restrict that and at times I find I need to pull away from the constant chatter of FB and as I have said before the apparent ‘perfect lives’ everyone seems to be having on there. Even Instagram which people now seem to use more often is just one photo of peoples wonderful lives after another I am surprised there aren’t shots of them wiping there arses on the toilet with happy smiles!
Its the way of the world now. Adapt or go mad!
I just realised it has taken me hours to write this. I have stopped along the way to cry, think, remember. Try make sense of things. Try put some clarity into a head and body that is tired and muddled. But that is today.
Love and whitelight xx
I was going to cease and desist. My blog. And it’s been 3 months since I have written.
Alot has happened. Alot has not changed.
Buggered if I know how to publish this without the reach of Facebook. I have recently deactivated my Facebook page and quite frankly, the peace and the lack of feeling as if my life was a complete loss compared to all these happy faces taking a trip here and there, newly married, happy shots of big groups of friends on big social occasions, all the ‘everyone else is bloody deliriously happy but me’ shots they post and POSITIVE thinking shit to boot; if you don’t think ‘this’ you are failing in life but we will pat your back anyway….bloody arrrggghh
Just about drove me to despair…in fact it did..
My life. Sucks. Has sucked for the last few years. Starting with Yank 1..the ‘him’ in Life beyond him…blahdy blah. Should never have gone there…but I did.
Yank 2 whom I still talk to and adore but he does not know what he wants (although he thinks he does) and is too frozen in place with his comfortable at present life. But there is something missing…I guess there is for us all…
There have been others recently too (I still play when I want to), but not really worth an honourable mention. Except the italian who is wonderful to talk to…we are friends.
Moving through prelude to and then meno..fucking pause itself that never seems to pause dammit…
My eldest son and his degenerative disease and losing his ability to talk, eat, walk etc etc and because of forces I am unable to control not being able to see him as often or even….oh god…
Living in a place I have not wanted to be in for far too long. Work..Economic situation in this goddamn arsehole of a parochial, expensive, isolated and far too keen on themselves city…plus much more and under a haze I cannot at this very point be more specific…
Oh shit..I should just shoot myself now. And I probably would if it wasn’t for my two..older now but beautiful sons…
Sometimes, I absolutely hate being a woman too. We sacrifice alot to bring up and look after our kids. Alot of men are able to continue their careers while we have to exit to have our kids and by the time we are back things have changed..we have to play catch up and if we divorce, if we aren’t bitches in general who clean our husbands out at divorce because we want to be fair and equitable we miss out on alot of superannuation and other things. Our bodies are stretched and scarred beyond recognition and so are our vaginas which MEN eventually use as an excuse to be seeking out younger women…because oh geez who wants a vagina that’s had a human life pass through it???
Why would a man want a wrinkled..life lived and totally fucked by men woman when we can have a 20 year old with a father complex, tight vagina and never has the brain capacity to question the sugar daddy even he with the limpest of cocks…fuck who cares I can buy buy buy on his credit card because the silly limp dicked bastard is just extremely happy I am even giving him the time of day…what limp dick?
Do I seem like a disconnected angry female…? Yes I am…
I could go on feeling victimised. Resentful. There is plenty of good reason. But the only one that this energy is going to effect is me.
This is why I stopped writing…I am still…not in a good place. Not good enough for the expectations society places on me…yet…what is the way out…
Love and whitelight xx
Its taken a while but my 20 year old (my youngest son..whom is well) made a valid point yesterday. We spent some valuable one on one time…rare these days but wonderful.
What is the the point of “life beyond him” mum..’him’..that time..is over.
He was right. I no longer consider that time in my life as relevant.
He..Him..is now a figment. A colossal waste of time and energy. And the rest pretty much are too. A ridiculous aberration. A dumb ass period of absolute futility.
I have dated a couple of times after him who shall remain nameless. In the rare time I would lift up and say ohh fuck it I have to get out..it reiterated that even though there are nice guys there..rare.. I am older and far more aware of what fits and what doesn’t.
I have finally learned and had enough. Now it is all about peace and being happy with me. Just me.
I still talk to Yank 2. The stayer in this all. He who shall remain nameless predicted I had a connection with Y2. Yes, I guess he was right. And very recently we seemed to get closer again. But I am no longer happy banging my head, considering the man first, penis driven (not that Y2 and I have been able to consummate as such..we only skype, email and phone but hell we’ve had some fun!). And he is damned interesting and funny and alot of things certain others just aren’t.
But I am also not certain about him. I met his beloved older brother, whom he loves and absolutely adores…when I was in Sydney earlier this year and he was lovely. Then there was a family wedding I was asked to go to, it seemed to be the thing…it kept us motivated for a while. I was meant to fly to Chicago to attend and to see him and luckily it didn’t happen. It appears it just wasn’t right. We are half a globe away. He had said that when it came to crunch time (a couple of days before I flew) he felt “If you see a tornado, do you run to it or from it?”
He told me that after we hadn’t spoken for a couple of months, and then only as friends.
I love him as a friend. And as time has gone on maybe more..again. Our conversations and other has progressed again. But I am SO DONE with all the wank and bullshit between men and women these days.
There is no such thing as loyalty. Everyone is looking for the next best thing. At the drop of a hat.
I’ve been through a blinding depression again recently. I have not felt so damn black and hopeless and profoundly sad and…oh the list goes on for a long time and this time sans medication. I have questioned why the flying fuck am I here…aside from my anchors..my sons. I can’t be bothered talking about it because these days everyone has an ‘expert’ opinion. AND THEY ARE JUST FUCKING IGNORANT AND WRONG more often than not.
So I don’t bother.
I can’t be bothered with lack of intelligence, experience and ignorance. Bias, parochialism, idiocy, self centredness, narcissism and Machiavellianism.
But it seems to be the way of the world. Elections, business, government, relationships etc.
It is time to say farewell to this blog. My friend indeed. It has served me well.
It is time to start a new thing. New title, theme, life, attitude…oh geez..god knows what…
At this stage I am tiddly and tired. My shuffle on Ipod has just started to play White Zombie…something really heavy and right now…it just doesn’t resonate.
Need to just write afresh. Start afresh when I feel motivated. Maybe use another method of reach. I am not happy with the fact that the people you don’t want to access your writing like prospective employers, government, other organisations and people that should have no real business in your business, use the public domain to form opinions and biases when in all reality sometimes they have no idea what is real and what is not.
In essence..if we are not at work or whatever it is none of their damned business. Stop spying you arseholes…FUCK OFF
Anyway. I thank my loyal few followers and readers. I wish you all alot of love and luck.
I will write again…under a different title and probably pen name..I hope we meet again
Love an whitelight xxx
Often when going through a depression it is difficult to wake up, you peel one eye open and even if the sun is shining through the curtain, say “oh whats the use?” and if lucky manage to fall back to sleep again. Sleeping is a welcome relief from the negative thoughts and ruminations, the anxiety you feel about having to interact with other humans because often you simply do not want to be anywhere near them, and the thought about how you are going to get yourself through the day. (Mind you that is when you have the semi functioning form of it).
I get a message this morning from a dear friend who tells me he has been diagnosed with ‘cancer of the esophagus’ and I sit for a while..in bed…in shock. I am not sure how to process this. After all it is not me, it is him that is about to go through a very tough journey but hopefully win the fight. I will be as ‘there’ for him as I can be (he is in Sydney and I am in Perth) but I am at present here because as I have mentioned many times because of my beautiful eldest son who is suffering the effect of a degenerative illness with no hope for a cure and at present it has progressed more rapidly than before. Why has this happened to people I love and care about the most. Why does it not happen to the evil bastards out there instead?
I spent a wonderful afternoon and evening with my boy yesterday and it lifted me immensely. Every moment I get to spend with him is a joy. A temporary relief from the constant feeling of what my psych calls pre-grief or anticipatory grief. Grief comes in many forms. It often accompanies certain feelings of guilt too especially as a parent that your child has this and why is it not you instead. You would give anything for it to be you instead. Or to find a way to make it all go away.
Often lately I just feel either highly emotional or completely numb. But compared to how low I got when I was depressed and yet on medication it seems I can at times still pull out of it for a while. I have been getting myself to the gym in the last weeks trying to lift out of it and gain strength and perspective again. Even going back to my psych for much needed psychotherapy which means I am no longer self medicating as much with alcohol etc. When I drink now I know I will be happy for a little while and then know I will feel low the next day but awareness when you can be helps.
And then into the mix I try relationships, still, even though it really probably isn’t the best time but I figure that this cycle of depression, grief and just general crap has been part of my life wasted in the last few years and am aware that time passes quickly. I dont want to say this next chapter this decade (I felt like my entire 40’s was pretty much a dead loss with the exception of my time bringing up and being with my sons) is also a waste.
So I keep trying. I believe in love.
I am one of those idiots who feels that remaining friends with exes and love interests should be easier than it actually is. I am a communicator, sometimes overly so but that is me. For years I kept the lines of communication open for my boys’ sakes with their father and it worked very well until it became abundantly clear that his new wife was incredibly insecure about it and me and started to cause all sorts of rubbish. Thankfully by that time my boys were grown enough that she could have no negative influence on them and how they are as people. There is a whole chapter on that crazy shit and in all honesty…it ain’t worth the energy.
Then the other night I spoke to a certain someone, after we had mended the fence slightly over the course of a week or so, slowly, and I thought that we could move forward and stay friends at least and then that came crashing down with an almighty bang ending with me hanging up after saying ‘you will not have to the chance to hurt me again’. This time I meant it. For self preservation. This guy was subtle but for me it was death by a thousand cuts.
I seem to be drawn to headcases. The unreachable. It is almost as if I choose these crazy bastards because I am comfortable in the ‘zone of pain’. It feels normal to me. If someone comes to me and is enamoured and gives me too much love and respect I can’t cope and it doesn’t feel right.
I am working on that. As I said I have started going back to my psych because on top of how careless I am with my heart I am not handling many things well. And I know it.
I was so drunk the other night, after my phone call with the above mentioned (I can’t say his codename because he reads and gets very annoyed with me, not that I should care anymore anyway as we will never talk to each other again. I am also annoyed that I let his attitude to my blogging effect my regular writing. I was too concerned about what he would think and that was stupid. Yet another man trying to control me. Never again) I also texted the ‘him’ (yank 1) in ‘life beyond him’ and made mention of how impressed I was with his amazingly large manhood albeit somewhat faulty these days it seemed…are you supposed to harangue a narcissist? Too bad, I did.
Yes I have lost it and at this point in time my care factor is zero. I am as Elton John would say “too low for zero”. (See song https://youtu.be/PjzkGKczRNY).
But in there still is yank 2. We still talk on skype at least once a week, even if not as long as we did and it is his friendship and our crazy illuminated, animated conversations that have helped. He talks me through things with intelligent perspective. He is as off the wall as I. It is sad it is only friendship but it is much treasured.
When will groundhog day cease and things start to make sense.
Love and whitelight xx
I’ve been at a loss about how to approach a myriad of things on my mind lately; relationships and dating in middle age (god I hate that classification), depression, life’s struggles, and crazy occurrences. I’ve missed writing my blog regularly, but I’d made a conscious decision not to for a little while because I caused offence to certain persons and that was not my intention. This blog was created for me and my journey and writing real life as a catharsis.
But as it turned out, being public and curiosity getting the better of people my blog was being ‘read’ and some were not very impressed at times! Some, I couldn’t give two hoots about that being the case but others I do care about.
So I have made the decision to retire certain persona for good out of new found understanding and respect.
I’ve read some funny things about dating mid life recently, I guess I was curious taking into account my shenanigans over the last few years. And when I hit 50 and I saw that most of my friends had managed to find a partner and I was still without something good and solid I started to think “my god, I am going to become a crazy cat lady, alone, die alone and they will eat my bones because there will be no one around who actually gives a flying fig” cue violins…bring out the Stradivarius…
And then I snapped out of that.
I am who I am. I like what I like and do what I do (yes sometimes spontaneously and without proper thought) and dont think I should have to apologise for being me. Left of centre and currently without said felines.
I’ve been researching for a possible book or article and also to assuage my curiousness about this mid life dilemma we all seem to go through at some stage and how we interact with each other and just generally the journey of finding love at this time in our lives.
I have noticed that women my age seem to become invisible to men on dating sites who even though they themselves are galloping towards 60 seem to list their preferred partners age at a minimum of 10-15 years younger so in essence their search will exclude attractive and intelligent women like me (LOL) who don’t look or act their age (well I do sometimes!) ie many mid 50’s men are looking for women in their 30’s or even early 40’s may be considered and won’t even look at someone their own age unless they have a mommy complex where they do look for someone slightly older because they need a ‘nurse with a purse’.
I am here to tell you, unless you have wads of cash in your wallet and are able to sustain a hard on you boys will rarely get a look insee! I see the sheer numbers of hopefuls who state they are a ‘young’ 55 par example. But I sincerely wish you luck! Then again paradoxically there are some young women who are looking for fatherly figures…;)
The irony is that even though many women are also overlooked and referred to as hormonal and crazy at our age (admittedly partially true) and carrying le baggage,the fact is alot of men this age are absolutely and irrevocably bat shit crazy themselves and going through their own mid life crisis often completely blind to the fact!
It’s hilarious and frustrating. These are some slim pickings I’m afraid!
And what bamboozles me more is that I often find young men are in absolute awe of us young and vibrant looking (!!!) 50’s women and we knock them back because we don’t want to be seen as ‘cougars’ or worse yet MILFS (I bet some aging impotent middle aged male Ad exec coined that phrase trying to be a smart arse).
So the dating dilemma continues. A friend of mine said the other day and he has known me since I was in my late teens “it is going to take someone really special and different to be able to match you. You are unique”. I looked at him quizzically and didn’t know whether to thank him or hit him! Arrrgghh. I dont have the energy for this dance at present. Well, today at least.
I spent precious time with my dear sons yesterday, my eldest seeming to struggle to stop the jerking movements that have resurfaced as the botox shots start to wear off and his tongue protruding out of his mouth stopping him from being able to talk and eat properly. (To recap; my eldest son has a rare neuro-degenerative disease N.B.I.A and it has progressed more rapidly this year sadly). There were times I thought he would jerk out of his wheelchair or tip it and some sad ignorant woman decided to pass comment on him controlling his tongue. It happens alot. Many do not understand. How could they.
But his brother and I managed to make him laugh (even that is becoming a choking risk now) with our mother-son comedy routine. Its those times that I cherish the most. Limited but they give me the greatest sense of peace.
After they left the restaurant I took myself out for a few drinks because I needed to numb the feeling that I just wanted to cry and at the same time scream ; ‘why is this happening to my boy?’ (I know we are not alone in tragedy in this world and there is worse but I cant help it).
Unfortunately, after many drinks I did find myself crying on the long train journey home and yet a lovely young man (probably my son’s age) came up to me and asked if I was OK and asked if he could give me a hug and said ‘I am here to talk to if you need to’. I was so grateful for his humanity and kindness, there is still some out there. But I was also mortified at my public display of pain. Its unusual because I usually do that in the privacy of my asylum.
I guess that is why I focus so much on love. It distracts me from the profound sense of loss I feel so deeply lately. But I need to pull myself out of it. Get on with life in the best way I can.
I think an afternoon of good music and wine is in order. Love and whitelight xx