Relentless..cat ping pong…f%$#k NBIA

They say the universe never gives you more than you can handle. Well, right now I challenge that assumption (and who the hell was the smart fucker who coined that phrase anyway?!). Things feel relentless. Things feel so mind blowingly out of control that at times I feel like I am out of body looking at my situation from a parallel universe saying ‘what the fuck?’. Like I am the mouse frozen with fear rolling stiff as a board between the paws of the merciless cat as he just ping pongs me to and fro…

I spent the day with my eldest son yesterday and his disease (neurodegeneration with brain iron accumulation or NBIA) is progressing fast again and I know that time is limited and it hit me after he left yesterday. It left me a crying mess on the bed in my bedroom. I don’t want to lose him. I don’t know how to stop it and that just kills me inside. He is now not in control of his body as the dystonia progresses, he writhes uncontrollably at times and often in pain and hearing him cry out for morphine…he was always a very strong boy pain wise so I know he really is in pain when he asks for it. He finds it difficult to speak now. You can just make out the words through the mumble because his tongue is not in his control anymore, he finds it difficult to eat. He has a tube in his stomach for when he cant. It is like he is trapped in a body that is failing him…I WISH IT WAS ME and not him. Why can’t I take that pain away from him?

Botox has been some help in loosening the limbs enough to give him temporary relief but it no longer available on subsidy. The government has pulled it. I don’t have that kind of money. His father does but for some reason chooses not to pay it anymore..probably to do with his controlling screaming harpy nutcase of a wife and the massive mortgage for the new mansion she talked him into buying….she has managed to destroy all relationships within his family and the one between him and I as well with her ridiculous insecurity. There is a reason why I divorced him biatch..I don’t want him back. But I do want him to communicate with me about my son and I want access to him (my son) which is not easy at present because of her and her Jedi mind control of him. Another out of control situation.

I can’t find work here at present, Perth is once again a lame duck as the mining boom has long gone and the idiot government here wasted so much money thinking the boom was forever that we are now in bad deficit and they are cutting essential services before anything else. I know I could if I go back to Sydney I would instantly get work but I can’t leave with my son fading now. I promised him.

And my love life reads like several bad episodes of ‘Days of our lives’. In a drunken stupor the other day (yes I am anesthetizing myself more regularly at present, it is the only thing keeping me from the nuthouse), I caved in and messaged ‘the good one’ about a week later, even after my brave talk about ‘the dance’ and he seemed content when I told him I am happy to ‘fuck him same place same time next week’…DONT JUDGE ME, I HAVE NEEDS…

Yes, I did use some harsh language and told him in no uncertain terms I am onto him..always was but I do like his penis, it is the best of a bad bunch at present. A distraction of sorts. He seemed to like my bravado and told me ‘I know I do your head in, but I really do like you’. Ahhhgh. What’re you gonna do?!

And more recently I find myself thinking that life in Arizona with the narcissist, amongst the rattlesnakes and scorpions may have been easier. I still at times have a mental picture of that photo of he and I when I was 16 and he was 25 (see my photos) and think..what might have been. He wasn’t a narcissist in those days. At least, I dont think so.

Ohhh, I am slipping…I am lost….what to do?

Love and whitelight xx

 

 

 

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